Tune in to hear Jess Barnes talk about the amazing AKU Society on @bbcradio4
SUNDAY 7.54am & 9.25pm
THURSDAY 6 MAY 2021 3.27pm
The AKU Society in the UK is raising funds to launch the first ever pediatric study into Alkaptonuria aka Black Bone Disease. A disease that, if left untreated, causes bones to turn black and brittle over time, leading to a host of torturously painful health issues. Don’t let time to run out for D and kids just like him, so we must act now.
The BBC link is below. So please tune in, have a listen and donate what you can – it will make a MASSIVE difference. Please don’t donate until the first appeal has aired.