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Tag: crowdfunding

Give Now! Crowdfunding to Support AKU Disease Registry

Posted on December 3, 2021December 3, 2021 by Denise Higgins

Our ‘mother’ society in the UK has just launched a crowdfunding campaign to raise funds for a global Black Bone Disease registry in order to gather information about AKU patients around the world in one single place.  This will allow all of the AKU societies representing patients throughout the world to make the case for access to the life-changing…

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