Shared by The AKU Society, UK
June 2022 marked the 10th anniversary of the Robert Gregory National Alkaptonuria Centre (NAC) offering life-changing support and treatment to AKU patients.
First commissioned by NHS Highly Specialised Services in April 2012, the NAC opened its door to patients for the first time in June 2012, and has now treated 89 patients.
Named after the AKU patient who co-founded the AKU Society, Robert Gregory, the NAC is a one-stop service providing assessment, nitisinone treatment, and monitoring of therapy and disease. Patients attend the NAC annually, with visits lasting two to three days.
To celebrate the ground-breaking achievement of the NAC, the AKU Society is collaborating with the NAC team to host a virtual celebration of the NAC.
On the 28th of July from 10:30am-12pm (UK time), we will hear from the staff at the NAC on the impact the NAC has had on the AKU community, as well as what to expect moving forward into the second decade of the NAC being in service.
If you would like to join the celebration it can be accessed via the following link: https://us02web.zoom.us/j/3689321695?pwd=M0RScFAzUFQ0OVBqZ0l2NTErWHhrZz09
If you have any questions, please get in touch with firstname.lastname@example.org