AKU Society of North America
Alkaptonuria: A rare genetic metabolic disorder
Cycle Pharmaceuticals has launched a patient survey to gather insights from the AKU community, to help shape future support programs, and to understand interest in webinars and in-person events. You can complete the survey here. Thank you!
Telehealth support is now available for AKU patients in the US. If you’re an adult (18+) in the US who has been diagnosed with alkaptonuria (AKU) but are not getting the support you need, you can now connect with a licensed AKU-trained healthcare provider online through UpScriptHealth. (read more)
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The AKU Society of North America is an organization that focuses on improving the quality of life of AKU patients and their families by providing education, resources, and opportunities for interaction for patients, families, and physicians associated with alkaptonuria (AKU). The Society will raise funds for support of research, education, and meetings to advance knowledge of the disease and possibilities for treatment of AKU. Funds will be raised through solicitation of donations and application for grants.