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AKU Society of North America

The AKU Society of North America is an organization that focuses on improving the quality of life of AKU patients and their families by providing education, resources, and opportunities for interaction for patients, families, and physicians associated with alkaptonuria (AKU). The Society will raise funds for support of research, education, and meetings to advance knowledge of the disease and possibilities for treatment of AKU. Funds will be raised through solicitation of donations and application for grants.

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RECENT POSTS

  • AKU Patient Registry
  • Rare Disease Day – 28 February
  • 10th Anniversary of the National Alkaptonuria Centre UK
  • Radio Interview with Denise Higgins on Handi-Link Radio
  • AKU: A Rare Story of Hope

[See All Posts]

501(c)(3) pending • EIN #27-5527376

The AKU Society of North America
6352 Corte del Abeto Ste B Carlsbad, CA 92011

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