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AKU: A Rare Story of Hope

ByDenise Higgins December 7, 2021March 20, 2026
Post Tags: #AKU#alkaptonuria#black bone disease#rare disease

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Nitisinone approved by the European Commission!
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Radio Interview with Denise Higgins on Handi-Link Radio

The AKU Society of North America
6745 Montia Ct
Carlsbad, CA 92011

“An organization dedicated to uniting, educating, and fundraising to benefit patients and families affected by alkaptonuria.”

  • Home
  • About Us
  • Learn
    • About Alkaptonuria
    • Treatment & Clinical Trials
    • AKU Publications
  • Links & Resources
    • Links & Resources
    • Worldwide Map
  • News
  • Donate
  • Contact Us