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Author: AKUNA

FDA has approved HARLIKU (nitisinone) Tablets

Posted on June 24, 2025 by AKUNA

BOSTON, Massachusetts and Cambridge, UK – June 19, 2025 – Cycle Pharmaceuticals announced that the FDA has approved HARLIKU (nitisinone) Tablets for the reduction of urine homogentisic acid (HGA) in adult patients with AKU.1  read more

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The History of AKU

Posted on June 15, 2025 by AKUNA

Co-founder of the AKU Society and inaugural director of the National AKU Centre, Professor Ranganath, gives a comprehensive overview of the history of AKU.

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AKU Patient Registry

Posted on April 9, 2024April 9, 2024 by AKUNA

If you have been diagnosed with AKU anywhere in the world, you can make an important contribution to our research into understanding, treating, and curing the condition.    WHAT IS THE AKU PATIENT REGISTRY? The global patient registry is managed by the AKU Society and collects data on the progression and prevalence of AKU across…

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Radio Interview with Denise Higgins on Handi-Link Radio

Posted on January 14, 2022January 18, 2022 by AKUNA

Handi-Link is a community radio show on CJAM radio focusing on disability issues. Host Cam Wells compares similarities and differences between disabled and able bodied life and talks to those from the disabled community. Listen to this segment where Cam Wells interviews Denise Higgins about being diagnosed with AKU, living with AKU, and treatment &…

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DevelopAKUre clinical trials update webinar

Posted on July 21, 2015July 2, 2021 by AKUNA

Prof. Ranganath will speak to about progress in the DevelopAKUre clinical trials to date, and answer questions from people living with AKU and their loved ones. Speakers: Professor Ranganath Medical Director of DevelopAKUre clinical trial, Helen Bygott Research Nurse for DevelopAKUre clinical trial, Lesley Harrison Patient Support Manager AKU Society, Rob Pleticha Online Patient Communities…

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SONIA 2 clinical trials

Posted on April 14, 2015July 2, 2021 by AKUNA

The SONIA 2 clinical trials will take place in three test centres across Europe. The first patients will begin on April 7th in Piestany, Slovakia. Our Liverpool centre will be the next to start on April 14th. The final location to start will be the Paris centre in France, which is scheduled to begin on…

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SONIA 1 Published Results

Posted on December 8, 2014July 2, 2021 by AKUNA

The main scientific paper from the first study (SONIA 1) was published last week in the Annals of Rheumatic Diseases. This study was the first part of the ongoing clinical trial, to find out what dose of nitisinone is best for patients. In today’s DevelopAKUre blog Oliver tells us about the results presented in the…

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RECENT POSTS

  • FDA has approved HARLIKU (nitisinone) Tablets
  • The History of AKU
  • AKU Patient Registry
  • Rare Disease Day – 28 February
  • 10th Anniversary of the National Alkaptonuria Centre UK

[See All Posts]

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